Resource index: All categories
On this site you will find practical help with implementation of the Data Protection Act (1998), Section 60 of the Health & Social Care Act (2001), the common law of confidentiality, the Human Tissue Act (2004) and Human Tissue Authority codes of practice, and all associated guidance.
D:
- Data
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Code of Practice to protect service user confidentiality (N. Ireland)
Code of Practice to protect service user confidentiality (N. Ireland)
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HESonline
Hospital Episode Statistics (HES) is the national statistical data warehouse for England of the care provided by NHS hospitals and for NHS hospital patients treated elsewhere. HES is the data source for a wide range of healthcare analysis for the NHS, government and many other organisations and individuals.
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NHS Information Security Management: NHS Code of Practice
NHS Information Security Management: NHS Code of Practice
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- Data Sharing
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MRC Ethics Series: Personal Information in Medical Research
Section 7.2: Re-use of data by third parties.
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MRC Ethics Series: Personal Information in Medical Research
Section 7: Storage and re-use of data.
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MRC web pages on Data Access
Principles of access to, and use of, MRC-funded research data.
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MRC web pages on Data Sharing
Information outlining MRC policy and aims on data sharing.
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Ministry of Justice: Data Sharing Review
Link to the Data Sharing Report and recommendations by Richard Thomas and Mark Walport.
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Organisation for Economic Co-operation and Development (OECD) report
Promoting Access to Public Research Data for Scientific, Economic and Social Development.
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- Dissemination
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DASH study newsletter (pdf)
Example of disseminating research findings and study updates to participants.
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National Health Development Survey website
Example of disseminating research findings and study updates to participants
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SHARE study newsletter (pdf)
Example of disseminating research findings and study updates to participants.
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Southampton Women’s Survey website
Example of disseminating research findings and study updates to participants
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